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A few Fridays ago, around an open fire, (Aggie is wearing swimming goggles to keep the smoke out of her eyes) we decided we would g... read more
Utku has convinced me that we should go for a run.
It's Utku's first race in the UK, and Anna's longest run ever - so to mark... read more
"Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions. Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But we do. Since 1959, we’ve been supporting families living with muscle-wasting conditions. We provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them."